Yeah, it's probably endo.
This website is the first space dedicated to providing research and resources about suspected endometriosis grounded in academic knowledge to public audiences. It also draws attention to the lack of information or appropriate care that is available for people with suspected endometriosis.
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This website was created by Elizabeth S. Cameron, with support from the Social Sciences and Humanities Research Council of Canada (SSHRC) and Queen’s University Public Scholarship Fellowship (2023-24). Elizabeth completed a Master of Arts in Sociology at Queen’s University in 2024, producing a critical scoping review of suspected endometriosis in medical literature as a thesis project.
SITE REFERENCE LIST
Agarwal, S. K., C. L. C. Chapron, M. R. Giudice, N. Laufer, S. A. Leyland, S. Missmer, S. Singh, and H. S. Taylor. 2019. “Clinical diagnosis of
endometriosis: a call to action.” American Journal of Obstetrics & Gynecology 220(4):354.E1–354.E12.
Becker, C. M., A. Bokor, O. Heikinheimo, A. Horne, F. Jansen, L. Kiesel, K. King, M. Kvaskoff, A. Nap, K. Petersen, E. Saridogan, C.
Tomassetti, N. van Hanegem, N. Vulliemoz, N. Vermeulen. 2022. “ESHRE guideline: endometriosis.” Human Reproduction Open 1–26.
Canadian Medical Association Journal. 2023. “Diagnosis and management of endometriosis.” CMAJ 195:E363-71.
Cooper Owens, D. 2017. Medical bondage: Race, gender, and the origin of American gynecology. University of Georgia Press.
Ellis, K., D. Munro, and J. Clarke. 2022. “Endometriosis is Undervalued: A Call to Action.” Frontiers in Global Women’s Health 3:902371.
Grundström, H., B. Gerdle, S. Alehagen, C. Bertero, L. A-N, P. Kjølhede. 2018. “Reduced pain thresholds and signs of sensitization in
women with persistent pelvic pain and suspected endometriosis.” Acta Obstetricia et Gynecologica Scandinavica 98:327–336.
Jones, C. E. 2021. “Queering gendered disabilities.” Journal of Lesbian Studies 25(3):195–211.
Joseph, K., and J. Mills. 2019. “Unmet treatment needs in patients with chronic pelvic pain in a New Zealand gynaecology service.”
Australian and New Zealand Journal of Obstetrics and Gynaecology 59:856–860.
Lindeman, T. 2023. BLEED: Destroying Myths and Misogyny in Endometriosis Care. ECW Press.
Mori, T., F. Ito, A. Koshiba, H. Kataoka, O. Takaoka, H. Okimura, K. N. Khan, and J. Kitawaki. 2019. “Local estrogen formation and its
regulation in endometriosis.” Reproductive medicine and biology 18(4):305–311.
Redwine, D. B. 2002. “Diaphragmatic endometriosis: diagnosis, surgical management, and long-term results of treatment.” Fertility and
Sterility 77(2):288–296.
Rei, C., T. Williams, and M. Feloney. 2018. “Endometriosis in a man as a rare source of abdominal pain.” Case Reports in Obstetrics and
Gynecology 1–6.
Seear, K. 2009. “The etiquette of endometriosis: Stigmatisation, menstrual concealment, and the diagnostic delay.” Social Science &
Medicine 69(8):1220–1227.
Singh S., A. M. Soliman, Y. Rahal, C. Robert, I. Defoy, P. Nisbet, N. Leyland. 2020. “Prevalence, Symptomatic Burden, and Diagnosis of
Endometriosis in Canada: Cross-Sectional Survey of 30 000 Women.” Journal of Obstetrics and Gynaecology in Canada 42(7):829–838.
Wahl K. J., Yong, P.J., Bridge-Cook, P., Allaire, C.; EndoAct Canada. 2021. “Endometriosis in Canada: It Is Time for Collaboration to Advance
Patient-Oriented, Evidence-Based Policy, Care, and Research.” Journal of Obstetrics and Gynaecology Canada 43 (1): 88–90.
Young, K., J. Fisher, and M. Kirkman. 2019. “‘‘Do mad people get endo or does endo make you mad?’’: Clinicians’ discursive constructions
of Medicine and women with endometriosis.” Feminism & Psychology 29(3):337–356.